On 30th September, the Trustees of the Prader Willi Syndrome Association organised a concert at the beautiful St Luke’s Church in Chelsea from 7.30pm.


Gregg, Nick and Josh who live at Bishops Croft attending along with Gayle and David.  We all went to London by train from Robertsbridge and then took a black cab from Charing Cross station to the venue, arriving at about 6.15pm.  We had been asked to arrive early as Gregg, Nick and Josh, together with others at the concert who have Prader Willi Syndrome, had been asked to present the flowers or bottles of wine to the musicians at the end of the performance.


It turned out that there were 3 adults 2 teenagers and 1 child with PWS at the concert, the child being a charming young lady called Hermione who very quickly stole the heart of all she came into contact with, including Gregg who did a great job of taking care of her for the entire performance and helping her to present flowers at the end.


It was a superb event with a wide variety of music, something to suit all taste.  The headline act was Mark Knopler (lead singer/song writer with Dire Straits).  Half way through the proceedings, Jo Brand (comedienne) delighted the audience with 15 minutes of humour.


The concert was really well attended and we are sure that we will hear how much money was raised for the PWSA.


Professor Tony Holland gave a short talk about Prader Willi Syndrome, and the photo below shows Professor Holland with Gregg and Hermione taken before the concert, as there was no flash photography allowed during the performance.


After the show, it was a struggle to get out of the Church, as there were so many people congregated outside, but we managed to find each other, hail a taxi and get back to Charing Cross station to get the 2245 train back to Robertsbridge.  We arrived back at Bishops Croft at 0015, all very tired, but still chatting about what a great evening we had all enjoyed.

February 18th, 2016

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