A group of 5 set off from Hastings on the morning of 3rd June to make their way to Derby for the now annual Our Way of Life conference.
In David’s vehicle were Lizzie, Steven and Ian supported by David and Sherrie.
We set off during the morning to arrive by 3.30pm. On paper we had plenty of time but due to heavy traffic and an accident (not us!) we did not arrive until just before 5 pm.
The first night we all enjoyed numerous games of bingo, followed by a quiz. As the evening came to a close there was disco music and time too catch up with old friends and meet new ones.
The next day it was an early start for breakfast, followed by the main conference. Lizzie, Steven and Ian went to the conference for the persons with PWS. Lizzie together with Katie from Bristol presented a piece explaining what the advisory board was and what they did. David and Sherrie went to the conference for parents and carers.
In the evening we all attended the main dinner, followed by an evening of entertainment and line dancing. Everybody dressed up in Western outfits and had a really enjoyable time. It was a late night with the group, retiring for bed at around midnight.
It was up for breakfast at 8.30, followed by saying goodbye to all our friends and making the return journey back to East Sussex arriving back at 1 o clock, just in time for lunch.
A big thank you to all at the PWSA for arranging this event which all the guys with PWS present were saying that it gives them a wonderful opportunity of meeting up with and exchanging views with others with their condition.
